Opinions expressed in the videos are purely individual, personal opinions of the patient, and by no means constitute treatment advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
Before diagnosis I was very tired – this was the reason why I went to the doctor.
She made a blood test, and an ultrasound, and she saw there was something in my liver.
But they didn’t find the primary tumour in my body.
So I hear the word cancer and I think I will die.
I meet a lot of doctors – I think six doctors. It was a long way, but I think not as long as other patients – it took about half a year to my final diagnosis.
“Now I’m very positive, I know about neuroendocrine tumours (NETs), I read a lot, I hear a lot and now it’s ok for me.”
I think my life is the same as before, the condition doesn’t affect my life – I can go to work part time, not full time, I have three children – I can manage.
Information about the emotional, physical and social challenges of living with NETs.
Patient support groups for NETs can often provide social and emotional support.
Learn about the different types of NETs, symptoms of NETs, their diagnosis and treatment.