This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France
Information about the emotional, physical and social challenges of living with NETs.
Ronny
If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.
Like many other cancers, the exact causes of most types of neuroendocrine tumours (NETs) are unknown. This includes types of NETs such as gastrointestinal NETs, pancreatic NETs and lung NETs.
There are some cases, however, where the cause may be known or in rare cases linked to a genetic syndrome. People who have one of the following rare family syndromes have a higher risk of developing NETs:
“We do know for some specific subtypes what causes NETs. For instance, there is a subtype in the stomach that we know is caused by low acid production.”
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“Nobody knows exactly what causes NETs. A small proportion of people with NETs can have a genetic predisposition, however, research into the cause of NETs is ongoing, and this does include looking into the genetics of neuroendocrine tumours”.
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
A cancer is usually named after the part of the body where it first started to grow. This is known as the primary site or the primary tumour. If the cancer cells spread from the primary site to another part of the body, it is called a secondary cancer or a metastasis.
In NETs, primary tumours can occur almost anywhere in the body but are most commonly found in the gastrointestinal tract (digestive system), pancreas and lungs.
They can also start in other regions, such as the ovaries and testes, and can spread to the liver or bone.
Compared with other cancers, NETs are small and usually grow slowly over a number of years but some NETs can grow faster than others. NETs do not usually cause noticeable symptoms until the tumours have already grown and spread. By the time they are found, more than 50% of NETs will have spread to other parts of the body.
Learn about NETs
If you have – or someone you know has – neuroendocrine tumours (NETs) or possible symptoms, then learning more about NETs may help reassure you that there are treatments available and many people live with NETs for long periods with relatively normal lives.
Find out how NETs are diagnosed and the tests that healthcare professionals may use to monitor NETs.
Diagnosis & Testing
Read about treatment options for NETs, including surgery, radiotherapy and medications.
Treatment Options
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