This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France
Information about the emotional, physical and social challenges of living with NETs.
Helen
If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.
The care of people diagnosed with neuroendocrine tumours (NETs) will usually involve a multidisciplinary care or NET team.
This team will include healthcare professionals from various clinical areas who can help to advise you about the different aspects of your NETs care.
The members of your NET team will depend on where you live and what services are available.
Below is a list of healthcare professionals who may be involved in the care of people living with NETs.
“Because NETs are so heterogeneous it is very important that patients’ cases are discussed in multidisciplinary teams”
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“I’ve had huge contact with oncologists, with surgeons, with radiologists, including interventional radiologists, with specialist nurses and other types of nurses…”
Opinions expressed in this video are purely individual, personal opinions of the patient and by no means constitute advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
“In my hospital you would be seen by a team with a specific interest in treating people with NETs”
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“I want to know what is coming. It reassures me to know what’s facing me, and what I should do. I feel like I am part of a team and they are all going to look after me.”
Opinions expressed in this video are purely individual, personal opinions of the patient and by no means constitute advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
Read about keeping track of your medical care, where you can download a copy of the Living with NETs Medical Details and Treatment Tracker.
Review the resources used to create the content in this section >
Learn about NETs
If you have – or someone you know has – neuroendocrine tumours (NETs) or possible symptoms, then learning more about NETs may help reassure you that there are treatments available and many people live with NETs for long periods with relatively normal lives.
Find out how NETs are diagnosed and the tests that healthcare professionals may use to monitor NETs.
Diagnosis & Testing
Read about treatment options for NETs, including surgery, radiotherapy and medications.
Treatment Options
Living with NETs - your resource for neuroendocrine tumours information and support 
