This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France
Information about the emotional, physical and social challenges of living with NETs.
Steve
If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.
Please be aware that all medicines may have side effects and may cause reactions that you do not want or expect.
The side effects of different treatments for neuroendocrine tumours (NETs) will vary from person to person, and will depend on the specific treatments, combinations of therapies, and the dosing you receive.
Visit the practical tips and tools section of the website for advice on managing symptoms and side effects of treatments for NETs.
“If you have side effects you will always need to contact your doctor, to see if the side effects are linked to your tumour or to a certain therapy.”
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
If you have any questions about the possible side effects of any medical treatments for your condition or overall health, then always ask your doctor for more information.
Many people living with NETs ‘do not want to trouble the doctor’ with their symptoms or side effects as these may seem trivial in comparison to their overall NET diagnosis. You should feel free to discuss any troubling issues with your doctor or other member of your NET care team. Let them know even if you are not sure whether the symptoms or side effects are significant or not, or whether there is anything that can be done about them.
Do not feel that you have to ‘put up with’ the negative effects that you may be experiencing as there may be simple changes to your treatment that could be made to help make your experience easier.
If you suspect you may be experiencing an unwanted or unexpected effect, whether or not you think it is related to your medicine, always seek advice from a qualified healthcare professional as this will need to be reported to the relevant health authorities in your country.
Read about keeping track of your medical care, where you can download a copy of the Living with NETs Medical Details and Treatment Tracker.
Review the resources used to create the content in this section >
Treating NETs
This section of the website gives you information about various medical treatments for neuroendocrine tumours. This is a general list of available treatments.
Please check with your own doctor to find out if a treatment listed on this website is available in your country and also if it is a suitable option for your case.
Patient support groups for NETs can often provide social and emotional support.
View a list of specialist NET clinics and hospital units in Europe.
Living with NETs - your resource for neuroendocrine tumours information and support 
