“If you have side effects you will always need to contact your doctor, to see if the side effects are linked to your tumour or to a certain therapy.”
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
If you have any questions about the possible side effects of any medical treatments for your condition or overall health, then always ask your doctor for more information.
Many people living with NETs ‘do not want to trouble the doctor’ with their symptoms or side effects as these may seem trivial in comparison to their overall NET diagnosis. You should feel free to discuss any troubling issues with your doctor or other member of your NET care team. Let them know even if you are not sure whether the symptoms or side effects are significant or not, or whether there is anything that can be done about them.
Do not feel that you have to ‘put up with’ the negative effects that you may be experiencing as there may be simple changes to your treatment that could be made to help make your experience easier.
If you suspect you may be experiencing an unwanted or unexpected effect, whether or not you think it is related to your medicine, always seek advice from a qualified healthcare professional as this will need to be reported to the relevant health authorities in your country.
Read about keeping track of your medical care, where you can download a copy of the Living with NETs Medical Details and Treatment Tracker.
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Have a question about NETs? See if it has been answered by one of our experts
Patient support groups for NETs can often provide social and emotional support.
View a list of specialist NET clinics and hospital units in Europe.