This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France
Information about the emotional, physical and social challenges of living with NETs.
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If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.
Taking up new hobbies or interests can help take your mind off living with neuroendocrine tumours (NETs) or neuroendocrine neoplasms (NENs). It can also give you a chance to do something you really enjoy. The physical and psychological benefits of hobbies in cancer patients are widely recognised.
If you are feeling unwell and you want to relax, then look for hobbies or online courses that you can do at home. If you want to get out of the house, then look for local hobby groups. These can give you a social outlet, and the chance to meet new people with the same interests as you.
“I have lots of hobbies, I’ve learnt to restore paintings, I like framing pictures, I like making jam, I have a garden…”
Opinions expressed in the videos are purely individual, personal opinions of the patient, and by no means constitute treatment advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
“Living’ is the keyword here. I’m still here and may not have as much strength as I did, but am using this time when I have ‘good hours’ and taking it easier when I need to.”
*Quote from a patient who completed an anonymous survey conducted in five countries in 2015
Living with NETs
This section of the website gives you information about the emotional, physical and social challenges of living with neuroendocrine tumours.
Remember to speak to your doctor about your condition and ways of coping; this section should not replace their professional advice.
Patient support groups for NETs can often provide social and emotional support.
Learn about the different types of NETs, symptoms of NETs, their diagnosis and treatment.
View a list of specialist NET clinics and hospital units in Europe.
Living with NETs - your resource for neuroendocrine tumours information and support 
