Peer support groups are available for carers as well as the people they are caring for. It may help to speak with other carers of people with NETs.
Your own primary care doctor can refer you to counselling services to help you develop ways of coping with having a loved one diagnosed with NETs.
Do not feel guilty about asking for someone else to help you or for leaving the person that you are caring for in respite care for a short time.
Respite care can be given at home, in a respite care centre or, in some cases, a hospital or hospice. It can range from 2–3 hours, overnight, or even for a few days.
You may want to hold a family meeting to discuss how everyone can help. Tasks that can be done by or shared with others include:
Set boundaries about what you can manage and when you need extra help:
Find out more information about NETs, and support for NETs carers by contacting a patient support group in your country.
Read practical tips from others to help make your life with NETs easier.
Patient support groups for NETs can often provide social and emotional support.
Learn about the different types of NETs, symptoms of NETs, their diagnosis and treatment.