This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France

Take a break

Peer support groups are available for carers as well as the people they are caring for. It may help to speak with other carers of people with NETs.

Your own primary care doctor can refer you to counselling services to help you develop ways of coping with having a loved one diagnosed with NETs.

 

Do not feel guilty about asking for someone else to help you or for leaving the person that you are caring for in respite care for a short time.

Respite care can be given at home, in a respite care centre or, in some cases, a hospital or hospice. It can range from 2–3 hours, overnight, or even for a few days.

Ask family for help

You may want to hold a family meeting to discuss how everyone can help. Tasks that can be done by or shared with others include:

  • Doing household chores such as cooking, cleaning, laundry, ironing or gardening
  • Driving the person with cancer to appointments
  • Looking up information on the internet
  • Picking up children from school or their other activities
  • Sitting and talking to the person you care for
  • Keeping other family members updated

Ways to cope

Set boundaries about what you can manage and when you need extra help:

  • Talk to charities or services that offer respite care
  • Look for additional help from community nurses or local patient services
  • Talk to occupational therapists about adaptions for the home
  • Use a diary to keep track of information, appointments and your own concerns
  • Don’t expect to be perfect in looking after the person with cancer

Find out more information about NETs, and support for NETs carers by contacting a patient support group in your country.

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Living with NETs

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This website is intended for an international audience, excluding the UK, United States, Canada and France. This website has been developed by Ipsen in collaboration with those living with NETs and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit www.ipsen.com for more information about us. Website design and development by Kanga Health Ltd. ALL-ALL-002300/November 2020