This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France

The time between appointments to diagnose or monitor your condition may be days, weeks, or months, which can be stressful.

Try not to worry too much, however, as NETs are often slow growing tumours and your cancer should not be getting any worse before your next visit. If you are worried, contact your doctor or specialist nurse if there is one in your NET team, or talking to your family and friends may help.

The good news is that treatments and support for neuroendocrine cancers are improving all the time, and many people with NETs can lead active, healthy lives, both during and after treatment.

Depending on where you live there may be a range of psychology services available to you, such as face-to-face consultations or telephone services. Your multidisciplinary NET team or primary physician can advise on what counselling services are available in your area.

Access to psychology services can be particularly useful if you find it difficult to talk to family or friends. Such services can offer help with certain aspects of living with NETs such as living with uncertainty and managing fatigue.

They can also provide you with techniques to manage any anxiety that you may be feeling, particularly in the lead up to having scans and the subsequent wait for results.

There are also a number of mindfulness and relaxation apps for smartphones and other devices available so you can find one that works for you. This website includes videos of patient stories and links to NET patient support groups in different countries that might help you deal with your reactions to NETs.

Patient*, Living with NETs

“It was overwhelming and very scary to be faced with a cancer diagnosis but it’s great to know that there are people with NETs out there with long survival rates.”

* Quote from patient who completed an anonymous survey conducted in five countries in 2015

What emotions are normal?

You might experience any of the following emotions after being diagnosed with NETs and during treatment.

Give yourself permission to cry

Crying is a healthy way to release your feelings of stress but it can be difficult to do in front of other people.

  • Find a safe space where you can let it all out, away from other people or distractions
  • You may find it easier to cry in private
  • Or ask a close friend to just be there with you, while you cry
  • If the crying becomes too overwhelming on a long-term basis, see your doctor, as it might be a sign of depression for which you could be treated.

Find out what works for you

Recognising and expressing your emotions can help you to manage your psychological and physical health. At first, you may find it easier to talk to someone besides your doctor, who can really understand your emotions. Find out what works for you:

  • Contact and join a patient support group
  • Ask your doctor or specialist nurse for a referral to a counsellor or psychologist.
  • Attend regular sessions with a counsellor or therapist

There may be focus groups or courses available to you on things such as living with uncertainty, fatigue management and mindfulness. Ask your doctor or specialist nurse about what is available in your local area.


Living with NETs

Follow this topic

Rate this content

Rating: 1.9/5. From 7 votes.
Please wait...

Find the support you need

Living with NETs: practical tips icon

Practical Tips and Tools

Read practical tips from others to help make your life with NETs easier.

Go to tips and tools

NET patient support groups

NET Patient Support Groups

Patient support groups for NETs can often provide social and emotional support.

Find Patient Support Groups

Living with NETs icon

Learn about NETs

Learn about the different types of NETs, symptoms of NETs, their diagnosis and treatment.

Learn About NETs

Ipsen logo
This website is intended for an international audience, excluding the UK, United States, Canada and France. This website has been developed by Ipsen in collaboration with those living with NETs and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit for more information about us. Website design and development by Kanga Health Ltd. ALL-ALL-002300/November 2020