This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France
Information about the emotional, physical and social challenges of living with NETs.
Helen
If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.
Although neuroendocrine tumours (NETs) affect only a small percentage of the general population at any one time, the number of people being newly diagnosed with NETs overall is believed to be rising.
This is probably due to increased awareness of the condition, improved diagnostic testing and a real increase in its incidence. NETs are the fastest growing class of cancers worldwide, accounting for around 2% of all cancers at any one time.
Depending on the type of tumour, most NETs occur in people aged 50 to 60 years old but they can affect anyone of any age, and generally affect the same number of women and men.
“NETs are uncommon compared to other cancers. However, the incidence is rising, because they are being diagnosed more.”
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“Men and women are equally likely to be affected. The average age of having NETs is around 50 to 60 years old, but this disease may occur in younger patients.”
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“Now that I’ve been living with the disease for some time, I’ve obviously learnt quite a lot about the disease itself, how it is affecting me, how it might affect me in the future, and so therefore I’m a very proactive patient.”
Learn about NETs
If you have – or someone you know has – neuroendocrine tumours (NETs) or possible symptoms, then learning more about NETs may help reassure you that there are treatments available and many people live with NETs for long periods with relatively normal lives.
Find out how NETs are diagnosed and the tests that healthcare professionals may use to monitor NETs.
Diagnosis & Testing
Read about treatment options for NETs, including surgery, radiotherapy and medications.
Treatment Options
Living with NETs - your resource for neuroendocrine tumours information and support 
