This website is intended for an international audience, excluding the United States, Canada and France
This website is intended for an international audience, excluding the United States, Canada and France

Sonia, Living with NETs

““I was very tired before my diagnosis of NETs. Fatigue was the reason I finally went to the doctor.””

View Sonia’s story >

Typical delays to diagnosis

Many doctors are unfamiliar with NETs or neuroendocrine cancer. So they are less likely to suspect this condition when they are faced with symptoms.

It can often take 5 to 7 years for people with NETs to receive a proper diagnosis. On average people see three different doctors before they are finally diagnosed with NETs. This delayed diagnosis can happen for several reasons given below.

Early diagnosis of NETs

In some cases, NETs  are found accidentally at an early disease stage during regular health checks or during surgery for other conditions. An early diagnosis may help to improve the course of some NETs.

Ronny, Living with NETs

““Something I say now to everybody who’s looking for a diagnosis, make a note of your symptoms, see if you can tie them in to something else that’s causing them. Then take that evidence to your doctor. Don’t do what I did, which was to ignore it because I was too busy at work.”

View Ronny’s Story >

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Find out more about NETs

Diagnosis & Testing

Diagnosing NETs

Find out how NETs are diagnosed and the tests that healthcare professionals may use to monitor NETs

Diagnosis & Testing
Treating NETs

Treating NETs

Read about treatment options for NETs, including surgery, radiotherapy and medications

Treatment Options
FAQs by experts

FAQs

Have a question about NETs? See if it has been answered by one of our experts

View FAQs

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Ipsen
This website is intended for an international audience, excluding the United States, Canada and France. This website has been developed by Ipsen in collaboration with those living with NETs and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit www.ipsen.com for more information about us. Website design and development by Kanga Health Ltd.