This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France
Information about the emotional, physical and social challenges of living with NETs.
Jennifer
If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.
The COVID-19 pandemic remains an ongoing concern in many countries. Much has been learned about the coronavirus that causes COVID-19 since it was first identified in early 2020.
Public awareness campaigns, testing of individuals and tracing their contacts, national lockdowns, and guidance on how to self-isolate if experiencing symptoms have been some of the measures introduced across the world in the attempt to prevent the spread of the virus ahead of there being a vaccine.
Healthcare professionals also have a lot of information about the virus to help them manage people that might need hospital treatment.
General information about coronavirus can be found on the World Health Organisation website. This includes advice on how to stop the spread of coronavirus by simple measures such as regular and thorough hand washing and how to put on and care for a fabric mask.
On this page, Dr. Mohid Khan discusses how the pandemic has affected people with neuroendocrine tumours (NETs) and Ronny gives his personal perspective.
Please talk to your NET care team about any specific concerns you may have about your care in relation to the coronavirus pandemic.
“It’s been a very strange time, something I’ve never experienced before.”
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Opinions expressed in the videos are purely individual, personal opinions of the patient, and by no means constitute treatment advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
“I have been able to continue to get my ongoing treatment with minimum risk.”
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Opinions expressed in the videos are purely individual, personal opinions of the patient, and by no means constitute treatment advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
“We quickly set up video conferencing with our close friends and family.”
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Opinions expressed in the videos are purely individual, personal opinions of the patient, and by no means constitute treatment advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
“I haven’t had any need to go to the hospital to see a specialist.”
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Opinions expressed in the videos are purely individual, personal opinions of the patient, and by no means constitute treatment advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
“I have not had an issue; this is something that’s actually worked quite well.”
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Opinions expressed in the videos are purely individual, personal opinions of the patient, and by no means constitute treatment advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
“Take control of what you want to do to feel safe.”
Click the right arrow to view the next video
Opinions expressed in the videos are purely individual, personal opinions of the patient, and by no means constitute treatment advice or guidance. Every patient should follow instructions from their treating physician as well as make their own informed choices.
“We are adapting to a new sort of normal in all of our lives.”
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The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“Fortunately most consulations can be done remotely.”
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The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“People should seek medical attention as normally as possible.”
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The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“We are extrapolating data from other cancers, which are generally more aggressive.”
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The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“The decision has to be made on an individual basis.”
Click the right arrow to view the next video
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“The advice is very general and can be given to other patients with other conditions.”
Click the right arrow to view the next video
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
Get support
If you are living with neuroendocrine tumours (NETs) and you are looking for clinics in your region and patient support services, then you have come to the right place. Search through the resources listed here to see if any of these can help you.
Information about the emotional, physical and social challenges of living with NETs.
Patient support groups for NETs can often provide social and emotional support.
Read practical tips from others to help make your life with NETs easier.
Living with NETs - your resource for neuroendocrine tumours information and support 
