If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.
Although discovering that you have neuroendocrine tumours (NETs, which you may also hear referred to as carcinoid tumours, GI-NETs, GEP-NETS, pancreatic NETs and lung NETs) and living with the condition might feel quite daunting and lonely, please be assured you are certainly not alone.
Read or watch some real Patient Stories here to find out some of the ways in which other people are living with NETs.
“My diagnosis was through complete chance, and was triggered when I told a nurse I’d lost weight.”
“I sat down with the nurse, and she went through the notes and said ‘It’s all clear,’ and I was puzzled. I said ‘Sorry?’”
“It reassures me to know what’s facing me, and what I should do. I feel like I am part of a team and they are all going to look after me.”
“The result of that is that they discovered that I had a tumour in my big bowel and that it had metastasised to my liver, all without me knowing.”
“It was very hard for me to speak to my children, to say, ‘I have cancer’, because I didn’t know a lot about neuroendocrine cancer.”
Do you have any practical tips that you think other people living with neuroendocrine tumors (NETs) might benefit from? If so, please send us your tips via this form. Once submitted your suggestion will be reviewed by our expert advisors and considered for inclusion when this site is next updated.
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