NETs and work

Deciding whether to continue or cut back on working will also depend on how you feel during and after treatment. You may find that exercising can help to relieve your fatigue and improve your energy levels.

Your decision to work will also depend on the support and flexibility of your employer. Many people who want to continue working during treatment are able to do so in some capacity. Some people manage by adjusting their work hours for a while, working part time or become self-employed. Or you may also choose to take a break or, depending on your age and financial status, to retire.

Like other people living with NETs, you will probably need to attend several medical appointments to see your doctor, receive cancer treatments, and get tests to monitor your condition. Some of these appointments may be scheduled during working hours, at medical centres that may not be close to your work location.

Ask your doctor if they offer any ways to reduce your travel time, such as medical appointments by telephone or by using an Internet calling app.

It might also be possible for some of your treatments to be administered at home, or at a medical centre closer to your home. Ask your NET team about the options available to you.

There is no obligation to share all the details about your diagnosis and treatment with your employer, but you may need to let them know about anything that may impact upon your ability to work or cause a health and safety risk for yourself or others.

Some companies, particularly larger ones, may have an occupational health department. If so it may be helpful to speak to them. They can complete a risk assessment for you based on the information you give them in order to keep you safe at work.

Please check your employment terms to determine what information you need to share with your employer, as it can vary greatly depending on the agreed conditions.

For example, you may want to provide the following information:

• If, and how long, you will be able to continue working
• Whether you will be able to perform all of your job’s duties
• If you want other people in your workplace to know
• If you need to take time off from work for treatment or recovery, and when you are likely to return to work
• If you are taking any medications that may cause side effects that may affect your performance or safety at work
• Any adjustments to your work environment or working hours that you may need

For information and advice on employment rights contact your specialist nurse who may be able to point you in the right direction of someone who can help.

If you do share this information you have the right to request that your employer does not divulge it to anyone.

You may need to talk with your doctor or multidisciplinary NET team before you can provide these answers, and you may not have some answers until you’ve started treatment. If you take paid personal leave because you are sick, your employer may require a medical document from your doctor confirming that you’re unwell.

For more information and advice about your employment rights, contact a social worker or occupational therapist. Your local patient support group or patient charity should also be able to help advise you on your rights at work.