This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France
Information about the emotional, physical and social challenges of living with NETs.
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If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.
If you are caring for a family member or friend with cancer, it can be physically and emotionally demanding. Caring for someone with neuroendocrine tumours (NETs) or neuroendocrine neoplasms (NENs) can present unexpected challenges for you as well as the person you are looking after.
Looking after your own wellbeing can help relieve stress and tiredness, and reduce feelings of frustration and isolation. Try to take time out for yourself every day, even if it is only a short amount of time.
Try to eat a balanced diet, get some exercise and keep up your own regular medical check-ups. Talk to your doctor about any health concerns, especially if you’re feeling depressed. Recognise that you need a break too in order to regain your strength.
Peer support groups are available for carers as well as the people they are caring for. It may help to speak with other carers of people with NETs.
Your own primary care doctor can refer you to counselling services to help you develop ways of coping with having a loved one diagnosed with NETs.
Do not feel guilty about asking for someone else to help you or for leaving the person that you are caring for in respite care for a short time.
Respite care can be given at home, in a respite care centre or, in some cases, a hospital or hospice. It can range from 2–3 hours, overnight, or even for a few days.
You may want to hold a family meeting to discuss how everyone can help. Tasks that can be done by or shared with others include:
Set boundaries about what you can manage and when you need extra help:
Find out more information about NETs, and support for NETs carers by contacting a patient support group in your country.
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Living with NETs
This section of the website gives you information about the emotional, physical and social challenges of living with neuroendocrine tumours.
Remember to speak to your doctor about your condition and ways of coping; this section should not replace their professional advice.
Read practical tips from others to help make your life with NETs easier.
Patient support groups for NETs can often provide social and emotional support.
Learn about the different types of NETs, symptoms of NETs, their diagnosis and treatment.
Living with NETs - your resource for neuroendocrine tumours information and support 
