Typical delays to diagnosis

Many doctors are unfamiliar with NETs or neuroendocrine cancer, so they may be less likely to suspect this condition when they are faced with symptoms.

According to a global survey, it can take an average of 9 years before a diagnosis of NETs is made. A delayed diagnosis can happen for several of the reasons given below.

Early diagnosis of NETs

In some cases, NETs are found accidentally at an early disease stage during regular health checks, or during surgery for other conditions. An early diagnosis may help improve the course of some NETs.

Find out more about NETs

Diagnosis and Testing

Diagnosing NETs

Find out how NETs are diagnosed and the tools doctors may use to help.


Living with NETs

The emotional, physical, and social challenges of living with NETs.

Living with NETs

Advocacy & Support

Living with NETs is not something that you have to do alone. Find help and support.

Get support
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