Many doctors are unfamiliar with NETs or neuroendocrine cancer, so they may be less likely to suspect this condition when they are faced with symptoms.
According to a global survey, it can take an average of 9 years before a diagnosis of NETs is made. A delayed diagnosis can happen for several of the reasons given below.
NETs produce symptoms that are common to many other diseases. These symptoms include diarrhea, flushing of the skin, stomach pain, and loss of appetite. Some people have no symptoms at all.
Because NETs symptoms mimic other conditions they are often misdiagnosed as another condition such as irritable bowel syndrome (IBS), Crohn’s disease, or menopause.
NETs are often small; some neuroendocrine cancers can be less than a centimeter in size.
There are many types of NETs, and a series of specific NETs tests may be necessary for a definitive diagnosis.
In some cases, NETs are found accidentally at an early disease stage during regular health checks, or during surgery for other conditions. An early diagnosis may help improve the course of some NETs.
Find out how NETs are diagnosed and the tools doctors may use to help.Diagnosing
The emotional, physical, and social challenges of living with NETs.Living with NETs
Living with NETs is not something that you have to do alone. Find help and support.Get support