Gather details about the diagnosis, treatment, and prognosis

  • Learn more about NETs, including your loved one’s type of NETs
  • Keep a record of medical appointments, test results, medications and dosages, symptoms and side effects, questions, and names and numbers for resources in preparation for an emergency

Take a break

Do not feel guilty about asking for someone else to help you or for leaving the person that you are caring for in respite care for a short time.

Respite care can be given at home, in a respite care center or, in some cases, a hospital or hospice. It can range from 2 to 3 hours, overnight, or even for a few days.

Ask family for help

You may want to hold a family meeting to discuss how everyone can help. Tasks that can be done by or shared with others include:

  • Doing household chores such as cooking, cleaning, laundry, ironing or gardening
  • Driving the person with cancer to appointments
  • Looking up information on the Internet
  • Picking up children from school or their other activities
  • Sitting and talking to the person you care for
  • Keeping other family members updated

Ways to cope

Set boundaries about what you can manage and when you need extra help:

  • Talk to charities or services that offer respite care
  • Look for additional help from community nurses or local patient services
  • Talk to occupational therapists about adaptations for the home
  • Use a diary to keep track of information, appointments and your own concerns
  • Don’t expect to be perfect in looking after the person with cancer

If at any time you feel you may hurt yourself or others, please call 911 or your local emergency services.

Find out more information about NETs and support for NETs caregivers by contacting a patient support group.

Find the support you need

Learn about NETs

Learn about NETs

Learn about carcinoid tumors, the types of NETs, and symptoms.

Learn About NETs
Diagnosis and Testing

Diagnosing NETs

Find out how NETs are diagnosed and the tools doctors may use to help.


Advocacy & Support

Living with NETs is not something that you have to do alone. Find help and support.

Get support
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