“We do know for some specific subtypes what causes NETs. For instance, there is a subtype in the stomach that we know is caused by low acid production.”
“Nobody knows exactly what causes NETs. A small proportion of people with NETs can have a genetic predisposition, however, research into the cause of NETs is ongoing, and this does include looking into the genetics of neuroendocrine tumours”.
A cancer is usually named after the part of the body where it first started to grow. This is known as the primary site or the primary tumour. If the cancer cells spread from the primary site to another part of the body, it is called a secondary cancer or a metastasis.
In NETs, primary tumours can occur almost anywhere in the body but are most commonly found in the gastrointestinal tract (digestive system), pancreas and lungs.
They can also start in other regions, such as the ovaries and testes, and can spread to the liver or bone.
Compared with other cancers, NETs are small and usually grow slowly over a number of years but some NETs can grow faster than others. NETs do not usually cause noticeable symptoms until the tumours have already grown and spread. By the time they are found, more than 50% of NETs will have spread to other parts of the body.
Find out how NETs are diagnosed and the tests that healthcare professionals may use to monitor NETsDiagnosis & Testing
Read about treatment options for NETs, including surgery, radiotherapy and medicationsTreatment Options
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