This website is intended for an international audience, excluding the UK, United States, Canada and France
This website is intended for an international audience, excluding the UK, United States, Canada and France
Information about the emotional, physical and social challenges of living with NETs.
Steve
If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.
For any questions you may have on neuroendocrine tumours (NETs) or neuroendocrine neoplasms (NEN), or on your health in general, please consult your doctor.
Like other cancers, the right care for NETs starts with being seen by an experienced, specialist doctor, but it’s also important to be a prepared patient, so you can have the right conversation with your doctor.
On this page you will find some example questions that you could use to talk about NETs with your doctor. You can also download a copy to take with you to consultation.
…there are questions to ask about the type of tumour – where it’s come from, whether it’s spread, what grade of tumour it is…
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
“Ask the doctor that is taking care of you whether he or she has seen a lot of patients…”
The healthcare professional shown in this video speaks about their own opinions and experiences and not about any specific patient. Some treatment options may not be authorized or available in your country. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of NET. No information within this video constitutes medical advice.
The following questions might be helpful to find out all you can about your diagnosis and treatment options for NETs from your doctor or other member of your NET care team.
Remember, always see a specialist healthcare professional to discuss any medical symptoms you may have, and get tested to receive a proper diagnosis of your condition.
- What type of NET do I have?
- Where did the NET originate in my body?
- Has my NET spread to other parts of my body?
- How likely is my NET likely to spread?
- What is a tumour stage?
- What is the stage of my NET?
- What is a tumour grade?
- What is the grade of my NET?
- What tests do I need to have for a diagnosis to be made?
- What treatments for NETs are available?
- Will I need surgery?
- Will I need more than one treatment?
- How will we know if my treatment is working?
- How will treatment make me feel?
- Will there be any side effects of the treatment?
- What changes should I expect in my daily life?
- What can I do to help manage my condition?
- Are there any patients support groups that you can recommend?
- Is there any information you can provide or recommend that I read about NETs
Learn about NETs
If you have – or someone you know has – neuroendocrine tumours (NETs) or possible symptoms, then learning more about NETs may help reassure you that there are treatments available and many people live with NETs for long periods with relatively normal lives.
Find out how NETs are diagnosed and the tests that healthcare professionals may use to monitor NETs.
Diagnosis & Testing
Read about treatment options for NETs, including surgery, radiotherapy and medications.
Treatment Options
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